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Autor
Domaradzki Jan (Poznań University of Medical Sciences)
Tytuł
Lay Constructions of Genetic Risk : A Case-study of the Polish Society of Huntington's Disease
Źródło
Polish Sociological Review, 2015, nr 1, s. 107-127, bibliogr. 69 poz.
Słowa kluczowe
Bioetyka, Podejmowanie decyzji, Studium przypadku
Bioethics, Decision making, Case study
Uwagi
summ.
Abstrakt
This article explores the lay constructions of genetic risk, the right not to know and the obligation to do a genetic test, know the risk and share genetic information with others. The study was carried out on 27 members of the Polish Society of Huntington's Disease. I describe their understanding of bioethics and their arguments for and against the right not to know. I argue that lay perceptions of the risk, rights and obligations mentioned above are shaped not only by the type of genetic disease involved but also depend on the social group to which it poses a threat and/or costs. Consequently, such obligations are framed toward: future generations, family members, society, the State and oneself. I also argue that genetics is turning families into bioethicists who, as lay experts, become one of the key players in the biomedicalization of society and bioethicization of genetic discourse.(original abstract)
Dostępne w
Biblioteka Główna Uniwersytetu Ekonomicznego w Krakowie
Biblioteka Główna Uniwersytetu Ekonomicznego w Katowicach
Bibliografia
Pokaż
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ISSN
1231-1413
Język
eng
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